Seizure detection devices: Exploring caregivers’ needs and wishes

نویسندگان

چکیده

Abstract Introduction User preferences for seizure detection devices (SDDs) have been previously assessed using surveys and interviews, but these not addressed the latent needs wishes. Context mapping is an approach in which designers explore users’ dreams fears to anticipate potential future experiences optimize product design. Methods A generative group session was held context approach. Two types of nocturnal SDD users were included: three professional caregivers at a residential care facility two informal children with refractory epilepsy learning disabilities. Participants invited share their personal briefed make wishes explicit. The audiotaped transcribed analyzed together collected material inductive content analysis. qualitative data classified by coding content, grouping codes into categories themes, combining those general statements (abstraction). Results “Trust” emerged as most important theme, entangling various emotional practical factors that influence caregiver’s trust device. Caregivers expressed several could help gain SDD, including integration different modalities, insight on all parameters overnight, adjustment algorithm, recommendation neurologist, set-up period. Needs regarding alerting seemed differ between our study: preferred be alerted only potentially dangerous seizures, whereas emphasized urge every event, thus indicating need settings. Conclusion In this explorative study, we identified key elements implementation importance gaining possibility adjust settings caregivers.

برای دانلود باید عضویت طلایی داشته باشید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

The Diabetes Attitudes, Wishes and Needs Second Study

Studies Study A. Holt RIG, Nicolucci A, Burns KK, et al., on behalf of the DAWN2 Study Group. Diabetes Attitudes, Wishes and Needs second study (DAWN2): cross-national comparisons on barriers and resources for optimal care—healthcare professional perspective. Diabet Med 2013;30:789–798. Study B. Nicolucci A, Burns KK, Holt RIG, et al., on behalf of the DAWN2 Study Group. Diabetes Attitudes, Wis...

متن کامل

Caregivers burden and needs in community neurorehabilitation.

OBJECTIVE The aim of this study was to analyse the burden on caregivers of chronic neurological patients taking part in community neurorehabilitation programmes, and to describe caregivers' socio-demographic features and needs. SUBJECTS A total of 118 pairs of chronic neurological patients and their caregivers. METHODS Caregivers completed the Caregiver Burden Inventory, the Beck Depression...

متن کامل

Exploring the Needs of Family Caregivers of Children with Attention Deficit Hyperactivity Disorder: A Qualitative Study

Background Attention deficit hyperactivity disorder (ADHD) is one of the most common chronic childhood disorders that lead to dysfunction and disability in childhood and subsequently be careful. This study aimed to understand the needs of the children's caregivers in Iran. Materials and Methods This qualitative research was conducted in 2016. Using purposive sampling, 27 participants from 20 ...

متن کامل

Interobserver variability of seizure semiology between two neurologist and caregivers

PURPOSE We aimed to compare the extent of inter-observer variability in the description of seizure semiology between both neurologists and caregivers. METHOD We prospectively investigated 93 consecutive patients monitored over the past 5 years in our video-EEG unit. The videotaped seizures of the patients were reviewed independently by two neurologists who were blind to the clinical data. The...

متن کامل

Family Needs of Caregivers of Stroke Survivors

Background: After a stroke, patient often suffers varying degree of disability that requires immediate hospital care and extended home care. Therefore, caregivers assume multiple roles to fulfil the needs of survivors at home. The current study aim to explore various needs felt by the caregivers of stroke survivors at home. Methods: A cross sectional community-based survey was carried out. Hund...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

ژورنال

عنوان ژورنال: Epilepsy & Behavior

سال: 2021

ISSN: ['1525-5069', '1525-5050']

DOI: https://doi.org/10.1016/j.yebeh.2020.107723